Emily had her 9 month follow-up appointment (post CART-19) at CHOP on Monday. She had a bone marrow aspiration/biopsy and spinal tap. No cancer cells were detected! The T-cells are still present in both her bone marrow and spinal fluid and the cells are still working! This was really exciting and such a relief to hear after our scare earlier in the week. Emily doesn’t have to go back to CHOP until April for her one year follow-up visit where she will also get her port out!
We are getting ready to go to NYC this coming weekend to speak at the Hope Gala – it should be a fun weekend! Then the weekend after is what we’ve been waiting 2 years for – the Penn State Dance MaraTHON!! We can’t wait to go. Tomorrow is the last day to send Emily mail for Kid Mail call at THON – to learn more and get directions for mailing letters, see this post.
The photo of Emily is one I was able to take this weekend. She doesn’t like for me to take her photo much anymore (after all the media photos she did the past few months she got a little tired of getting her photo taken!), but she allowed me to take just a few shots and I was able to get this one! I love the way it turned out.
We will be posting tomorrow about an announcement regarding CHOP! We will be posting about it on her Facebook page first.
You will also see a few more photos of Emily