We have been taking Emily to many appointments to check and make sure her treatment didn’t cause any other problems. The specialists have not found any problems that they felt would be chemo related. Dr. Powell had suggested the specialists because of Emily having received most of the chemo drugs available. Those drugs are brutal on the body. Emily has been feeling pretty good and so far is not showing any permanent damage from her treatment.
Emily is really excited about an offer to come to Los Angeles. We were contacted by The Leukemia and Lymphoma Society (LLS) in L.A., that an actor is winning an award for doing charitable work with LLS. He suggested that it would be nice to have Emily there when he wins the award. They thought it would help spread awareness for us to attend so we are all excited and are trying to make it happen. We will give full details as soon as it is confirmed that we are going. We had talked to Emily while she was fighting hard to survive at CHOP, about returning to Disney some day. We are going to try and take her to Disneyland and Universal Studios while we are in L.A. and make our trip a week long vacation.
I myself spent the night in Altoona Hospital last night. I had my blood checked on Monday and got a call yesterday that some of my electrolytes were critically low. I feel okay and was discharged today after getting my counts up with IV’s. I tried to rest while I was there but every time an IV pump alarm goes off or heart monitor, it reminds me of the PICU and Emily struggling. I don’t think Kari and I will ever get over that. I missed them both terribly and couldn’t wait to get discharged. Tonight I am thankful to be home with them and we are ready to have some fun tomorrow at a hometown tradition, The Fourth of July Parade at Osceola Mills, PA.
WE BELIEVE! ~Tom