Two years ago on this night…

2012-04-27 21.26.44Two years ago on this night our family members came to the Children’s Hospital of Philadelphia to be with Emily. The doctors told us to call them in because the end of Emily’s life was near. We asked for prayers and they came from all over the world. I told them that somehow I knew that Emily would make it through the night and keep fighting. The pediatric intensive care doctor said we are the biggest P.I.C.U. in the country and almost every child that is put on a ventilator makes it through and survives. Unfortunately your daughter is most likely not going to be one of them. She has less than a one in a thousand chance of survival. Kids just don’t recover from being this sick.

I asked for them to never quit trying to help her because she would make it through. He looked at me like I was the most naive parent in the world. He did say though that we will never stop trying to help her survive. We had our family members and our Penn State family members talk to Em and encourage her to keep fighting. She made it through that night and slowly started to get better. I posted then that I BELIEVED that I was witnessing a miracle.

Thanks to everyone that prayed for Em and helped us in so many different ways. Thanks to all the amazing doctors, scientists, and staff that treated Em through her entire fight. Thanks to all of the families that walked the road before us and helped guide and support us. I feel very lucky and thankful for every day that I spend with my hero. Em will be two years cancer free on 5-10-14. I feel that during your darkest hours never give up hope and keep your faith!

Sometimes Miracles do happen!

We Believe!

~Tom

T-Cell Therapy 2-Year Anniversary

This week marks two years since Emily had the T-cell therapy! Has it really been two years already?! We are headed to Philadelphia later today for her 2-year follow-up visit at CHOP. We will be there Wednesday and Thursday for several appointments. Wednesday is her oncology visit including bloodwork which she hasn’t had done for several months now. It has actually been nice not seeing labs – it’s hard not to panic every time her labs look a little off, and I’ve realized that not seeing labs and obsessing over every value has helped me worry less about Emily’s health the past few months. The weeks leading up to an appointment are always stressful though and we will be anxious until we see normal bloodwork. She also has to get a renal ultrasound to check her kidneys. The PBS film crew will be following Emily at her appointment and throughout the day to get some footage for the cancer documentary.

After her appointments Wednesday we will stay overnight with Emily’s Aunt Kristen and Uncle Nick so Emily can meet her new baby cousin Sam! She has a few other appointments back at CHOP on Thursday with pulmonology and immunology to hopefully figure out why she can’t get rid of the cough/congestion she’s had for quite awhile.

We have some travel coming up over the next few weeks to Philadelphia (twice), Pittsburgh (Emily is a junior bridesmaid in Aunt Brenda’s wedding!), Washington DC, and NYC. Also during that time we will be celebrating Emily’s 9th birthday (May 2nd) and then her 2-year cancer free anniversary (May 10th)! It will be busy but we’re looking forward to it – with her birthday and anniversary coming up we are more thankful than ever that she’s healthy (at least we hope so – we always worry about saying that until we see normal bloodwork!).