We have had a lot of positive things happening lately which gives us the chance to continue spreading awareness about Emily’s miracle and the amazing success her therapy continues to have. She has been feeling great and she is thriving in 4th grade, learning to play the piano, and finally ready to try organized sports. We continue to get amazing offers for film and TV projects and we tell everybody as long as Emily feels good and that they make it fun for her then we will participate. The message is what is important and we want to make sure in the future all parents who battle pediatric cancer have the outcome that we have had. We know that there are many other trials waiting to start that need funded. Emily has even said when asked in interviews that she doesn’t want to lose any more friends.
Two weeks ago, Emily had an appointment at CHOP for bloodwork. While we were there we did filming and interviews with Shane Smith of HBO’s documentary show Vice. The T-cell therapy will be featured on an episode in late February. Shane mentioned that the T-cell therapy has reported a 90% success rate. Meaning that 90% of kids who get T-cells are able to achieve remission. I said that is phenomenal but it isn’t high enough. That means 10 families out of 100 will go home without their kids and we know many of these families. We know if there was more funding that Dr Grupp and all of the other oncologists would not have to be devastated when they have to tell another family that with all of their efforts, for some reason their child would not survive. I am amazed at how all of the staff dealing with pediatric cancer can deal with the stress. We are trying to do everything we can to get more donations and funding.
The Ken Burns film called the Cancer: The Emperor of All Maladies will air on PBS on March 30, 31 and April 1. It will be 2 hours per night and Emily’s story will be toward the end of the series. A one hour premier has been made and it will be shown on February 12th at the Penn State Hershey Medical Center. We will attend and then participate along with director Barak Goodman in a discussion with the audience after. It is open to the public.
We have more exciting things to announce in the future but the most important thing is that Emily’s bloodwork came back with zero B-cells. The T-cells are still working and her bloodwork looks perfect. I wish I could say we will worry less now but the truth is we are now and will always just be happy for every day we get to spend as a family.