Nine Months – Still in Remission!

Emily Emma Whitehead

Emily had her 9 month follow-up appointment (post CART-19) at CHOP on Monday. She had a bone marrow aspiration/biopsy and spinal tap. No cancer cells were detected! The T-cells are still present in both her bone marrow and spinal fluid and the cells are still working! This was really exciting and such a relief to hear after our scare earlier in the week. Emily doesn’t have to go back to CHOP until April for her one year follow-up visit where she will also get her port out!

We are getting ready to go to NYC this coming weekend to speak at the Hope Gala – it should be a fun weekend! Then the weekend after is what we’ve been waiting 2 years for – the Penn State Dance MaraTHON!! We can’t wait to go. Tomorrow is the last day to send Emily mail for Kid Mail call at THON – to learn more and get directions for mailing letters, see this post.

The photo of Emily is one I was able to take this weekend. She doesn’t like for me to take her photo much anymore (after all the media photos she did the past few months she got a little tired of getting her photo taken!), but she allowed me to take just a few shots and I was able to get this one! I love the way it turned out.

We will be posting tomorrow about an announcement regarding CHOP! We will be posting about it on her Facebook page first.

You will also see a few more photos of Emily 🙂

THON Kids Mail Call

copyright-kari-whitehead-2012-6060 You can send Emily mail at THON for Kids Mail Call! (directions below)

In 22 days we will join 15,000+ Penn State students and other pediatric cancer families for the Penn State Dance MaraTHON! THON is magical and it’s our favorite weekend of the year. For us THON is much more than the money the students raise – they have become family. THON students are amazing and work incredibly hard all year long in their fundraising efforts and bring HOPE, JOY, LOVE, FUN, and SMILES to the kids fighting cancer. We will be posting more about THON over the next three weeks and sharing THON photos and our favorite THON memories.

We are part of the Adopt-A-Family program which means our family was paired with a PSU THON organization that wants to provide support and encouragement to us. Emily was ‘adopted’ two plus years ago by the Penn State Public Relations Student Society of America – PRSSA. They are the BEST! Our organization chose two members to dance in THON this year and they are: Chelsea Slavin and Devin Schiaffino! It takes a lot of physical and mental toughness to get through those 46-hours but we know Chelsea and Devin can do it – they will be EMMA STRONG. Over 700 other Penn State students will be chosen as dancers for the 46-hour no sitting, no sleeping dance marathon to raise money for pediatric cancer and we will be there all weekend to support them.

You can send mail to Emily at THON for Kids Mail Call. What is Kids Mail Call? On Saturday night of THON weekend, Emily will go up on stage and get mail sent to her from students, friends, and families!

You can send the mail to:
Emily (or Emma) Whitehead
c/o THON Kids Mail Call
210 HUB
University Park, PA 16802

You can also send mail and packages to Emily’s dancers to support them through the weekend! Let them know you are a friend of Emily’s. You can send our dancers mail at:

Attn: Mail Call
Chelsea Slavin – #297A and/or
Devin Shiaffino – #297B
210 HUB
University Park, PA 16802

Mail must be postmarked by February 5th. If you work at Penn State you can send the letters to 324 HUB and packages to 327 HUB. If you are not sure what to say, draw a picture or say a couple of words of encouragement! Read here for more info on what to put in letters and packages.

To support THON please visit (you are asked to choose a THON organization to credit – Emily’s org to credit is: Public Relations Student Society of America). All money from THON goes to the Four Diamonds Fund, which directly supports pediatric cancer patients at the Hershey Medical Center in Hershey, PA. Families supported by the fund are referred to as “Four Diamonds Families”. Some of the money goes directly to the patients and their families in the form of gas coupons (which was SO helpful to us back when we had weekly 2-hour round trips to Hershey for Emily’s appts), food coupons to use at the medical center during long stays (also handy since we lived there for months last year), prescription copays, and offsets the cost of treatment that insurance does not cover. The money also helped build the awesome new Children’s Hospital at Hershey Medical Center which opens this month.

Fire With Fire: A Ross Kauffman Film

We have been waiting to share this with you! This is the short film by Academy Award winning Director Ross Kauffman about the clinical trial and Emily’s story. It is AMAZING and VERY powerful to watch!