Emily "Emma" Whitehead :: My Life After Cancer » My journey after fighting pediatric cancer.

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T-Cell Therapy 2-Year Anniversary

This week marks two years since Emily had the T-cell therapy! Has it really been two years already?! We are headed to Philadelphia later today for her 2-year follow-up visit at CHOP. We will be there Wednesday and Thursday for several appointments. Wednesday is her oncology visit including bloodwork which she hasn’t had done for several months now. It has actually been nice not seeing labs – it’s hard not to panic every time her labs look a little off, and I’ve realized that not seeing labs and obsessing over every value has helped me worry less about Emily’s health the past few months. The weeks leading up to an appointment are always stressful though and we will be anxious until we see normal bloodwork. She also has to get a renal ultrasound to check her kidneys. The PBS film crew will be following Emily at her appointment and throughout the day to get some footage for the cancer documentary.

After her appointments Wednesday we will stay overnight with Emily’s Aunt Kristen and Uncle Nick so Emily can meet her new baby cousin Sam! She has a few other appointments back at CHOP on Thursday with pulmonology and immunology to hopefully figure out why she can’t get rid of the cough/congestion she’s had for quite awhile.

We have some travel coming up over the next few weeks to Philadelphia (twice), Pittsburgh (Emily is a junior bridesmaid in Aunt Brenda’s wedding!), Washington DC, and NYC. Also during that time we will be celebrating Emily’s 9th birthday (May 2nd) and then her 2-year cancer free anniversary (May 10th)! It will be busy but we’re looking forward to it – with her birthday and anniversary coming up we are more thankful than ever that she’s healthy (at least we hope so – we always worry about saying that until we see normal bloodwork!).

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MardiPaws Parade

The blog has been quiet lately – mostly because we have been too busy to write! It’s nice to say we have been too busy doing fun things and enjoying life to keep it updated! Emily’s Facebook page is more active since it’s easier to post quick updates there – we’ve been up to quite a lot.

First, an update on Emily’s health. She has been doing great and her blood work has looked perfect! She’s been dealing with a chronic cough and sinus issues though for several months. We aren’t sure if it’s just due to the cold/flu season, allergies, or something else. She seems to feels fine though – maybe it’s just all this cold, snowy weather we’ve had here all winter!

We’ve been on a few trips the last few months. In December we were invited to Los Angeles to appear on The Doctors show and tell Emily’s story. Then in January, Emily was invited to the Leukemia and Lymphoma Society Team in Training Disney World Marathon where we also spoke and told Emily’s story at the inspirational dinner. We watched the half marathon and marathon runners cross the finish line, and visited some of the Disney parks. Then, of course in February there was the Penn State Dance MaraTHON – it was amazing. We will try to update the blog with more posts/photos about them when we can.

Last weekend we traveled to Louisiana where Emily was invited to be the Grand Marshal at the post-MardiGras parade called the MardiPaws Parade. She had a blast (and we all enjoyed the warm weather!). It’s a parade of dogs in costume and benefits both “kids and canines”. The parade is a major fundraiser for three non-profits in that area: one benefits leukemia patients, one benefits an animal shelter and one benefits an arts program for children. When she was invited we thought it sounded perfect because Emily loves animals – especially dogs!

The parade has a Queen and King (dogs of course!) and we stayed with the family of Coco Carey who was Queen of the parade. We had a great time with the Carey family – they invited us to stay in their beautiful home and kept us entertained all weekend! Their youngest daughter Mollie is 10 years old and she and Emily became great friends right away.

EMILY AND MOLLIE:

Saturday, we had a tour of Global Wildlife Center and rode around feeding the animals. Emily was excited because she got to kiss a giraffe! She exclaimed: “I’ve always wanted to kiss a giraffe!”. I guess she can cross that off of her bucket list:-)It was so much fun and we loved hearing Emily giggle at the animals.




WITH TOUR GUIDE RUSSELL:

Later, we went to McClain’s Pizzeria – the pizza is amazing and Emily and Mollie, along with McClain’s daughter Ruby, got to make their own pizzas. Emily was so excited to make her own pizza and learn how to twirl the dough.






Sunday was the MardiPaws parade! Emily just hugged all the cute little dogs and giggled at their costumes. Celebrity monarch in the parade was Ian Somerhalder (he played Boone on LOST and is now on Vampire Diaries) who is originally from that area of Louisiana. Emily is too young to watch Vampire Diaries and wasn’t sure who Ian was and said she was more interested in the cute dogs than the cute guy:-)If she was only a few years older she would have been MUCH more excited to meet Ian (I was very excited and so were the thousands of other girls who came to see him!).

Emily rode in the parade with a cute little dog named Chloe and threw beads to the crowd. The parade was only 1-mile long but they estimate about 35,000 people came out to see it. It was a beautiful route along the lake in Mandeville, Louisiana.



MEETING IAN:



WITH CUTE NEW FRIENDS:

It was a wonderful, fun weekend – one we will treasure because we saw Emily laugh, giggle, and have fun all weekend. THANK YOU so much to Denise Gutnisky for inviting us to the parade and to The Carey Family for inviting us to stay at their home and entertaining us! We had an amazing time!

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  • Linda Matason - Dear Emily, what a wonderful time you are having! You are like a little movie star! You and your Mom and Dad so deserve all of this fun you are having and you made a new friend!
    My name is Linda and I work with your Aunt Jamie.
    You are one amazing little girl!ReplyCancel

  • Melissa Patrick - So wonderful to see you all having such a great time!Love to see Emily big smile. Such beautiful Pictures, I have to say Emily you got closer to a giraffe than I ever have . That’s so awesome. Lots of Hugs and Prayers .
    MIssyReplyCancel

  • Andrea - Thanks for sharing it’s great to see Em enjoying life as she should. My favorite is the one she is kissing the giraffe. She continues to be an inspiration to all. Thoughts and prayers are with Emily and her family always. WE BELIEVE!!!!!ReplyCancel

Merry Christmas 2013

Our only Christmas wish is for Emily to stay cancer free and healthy. She is our Christmas miracle and we can’t imagine life without her. We are very grateful to be spending this time together. Thank you for being part of her journey and continuing to give our family love and hope, especially when we needed it most. Thank you for keeping Emily in your prayers. Hold your family tight and enjoy every moment this holiday season.

Merry Christmas,
The Whiteheads – Tom, Kari, Emily & Lucy

Photo credits: Family photo – Kari Whitehead Photography; Individual photo of Emily – Christine Chardo Photography

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  • Georgette Haupt - Dear Emily,

    Merry Christmas from your friend in Alabama. I live very near to the Gulf where the sand is as white as your snow. I am friends with Connie Kawa, and she keeps me up to date on you and your progress.

    I am so glad you are cancer free, and are able to truly enjoy this wonderful Christmas season with your Mom and Dad, and all your friends. I am so happy for you, and will continue to keep you in my prayers.

    Blessings to you!
    Georgette Haupt
    Elberta, AlabamaReplyCancel

  • Deborah Kile - Have a very Merry Christmas! God bless you with a miracle. Enjoy herReplyCancel

  • Karen Sankey - Wishing you a happy and healthy holiday season! May God bless you all! Merry Christmas Tom, Kari, Emily and Lucy!ReplyCancel

  • cathy mckinney - MERRY Christmas sweet girl and your family have a great day and may God keep you well love you allReplyCancel